“ZTTK patients typically have intellectual disability, motor and speech delays, seizures… Many do not talk, never achieve independence, or have children.”
If this was your child’s future, what would you do to help them?
Our Mission
We are funding research to develop a treatment for Lukie and others with ZTTK. Our current focus is funding research to establish the first stem cell models for ZTTK to better understand the disease and test preliminary drug approaches. We are working with top scientists and doctors who are experts in drug development for ultrarare neurodevelopmental diseases like ZTTK.
All funds raised will be used for charitable purposes to fund research for the development of a treatment for Lukie and others with ZTTK.
