Events

Featured past events

2025 Feb Rare Disease Day Events #1

We were honored to speak at the 10th Annual Rare Disease Day Event, “An Era of Innovation for Rare Diseases,” hosted by The Termeer Foundation in collaboration with the Broad Institute of MIT and Harvard‘s Ladders to Cures Scientific Accelerator.

This year’s event shone a spotlight on groundbreaking approaches to understanding and treating rare diseases using genetics, functional genomics, computational biology, and chemical biology—fields that are changing the future of healthcare.

See our talks at the following times!

• 𝐏𝐚𝐭𝐢𝐞𝐧𝐭 𝐀𝐝𝐯𝐨𝐜𝐚𝐜𝐲 𝐊𝐞𝐲𝐧𝐨𝐭𝐞 (1:02:35): 𝑃𝑎𝑟𝑒𝑛𝑡𝑠 𝐴𝑐𝑐𝑒𝑙𝑒𝑟𝑎𝑡𝑖𝑛𝑔 𝑎 𝐶𝑢𝑟𝑒 𝐹𝑜𝑟 𝑍𝑇𝑇𝐾 𝑆𝑦𝑛𝑑𝑟𝑜𝑚𝑒

• 𝐏𝐚𝐧𝐞𝐥 𝐃𝐢𝐬𝐜𝐮𝐬𝐬𝐢𝐨𝐧 (3:13:57): 𝑃𝑎𝑡𝑖𝑒𝑛𝑡𝑠 𝐷𝑟𝑖𝑣𝑖𝑛𝑔 𝑆𝑐𝑖𝑒𝑛𝑡𝑖𝑓𝑖𝑐 𝐵𝑟𝑒𝑎𝑘𝑡ℎ𝑟𝑜𝑢𝑔ℎ𝑠

Upcoming events

Interested in organizing an event to raise awareness and/or fundraise for ZTTK Research? Contact Ada Lio at alio@zttk.org!

Want to help us raise awareness by wearing a Lukie T-shirt or show off a Lukie sticker? Fill out his form here!

2025 Seasonal Cambridge Classic 5Ks

Join Team Lukie #CureZTTK and run/walk with Lukie’s mama or cheer us on to support ZTTK Research!

Spring Classic 5K – 3/30/25 @ 9:30AM

Summer Classic 5K – 6/29/25 @ 9:30AM

Fall Classic 5K – 10/5/25 @ 9:30AM

Winter Classic 5K – 12/7/25 @ 9:30AM

Past events

2025 Feb Rare Disease Day Events

We are honored to be speaking at 2025 Rare Disease Day Forum and share our experience joining the Rare Entrepreneur Bootcamp in 2024 that kickstarted our drug development journey.

At this event, MassBio will host rare disease patients, caregivers, advocates, and researchers to mark Rare Disease Day on February 28, the rarest day of the calendar year, to bring attention to advancements in the diagnosis and treatment of rare and ultra-rare diseases.

Join us and register here!

Nov 10 (Sun) | 2024

2024 B.A.A. Distance Medley: Boston Half Marathon

Run with Lukie’s mama or cheer us on to support ZTTK Research!

September is ZTTK Awareness Month!

Libations for Lukie | Pre-5K Celebration

9/14 Sat | 5-7pm | Aeronaut Allston Beer Garden

Join us at the Aeronaut Beer Garden in Allston! We will have a table there to raise awareness for ZTTK. We will also have Lukie T-shirts and stickers for ‘Lukie ambassadors’!

5K for ZTTK

Sep 21 Sat | 10am-12pm | Castle Island, South Boston

Walk or run around the Castle Island. We will also celebrate together with lunch at Sullivan’s!

Join Team Lukie!

Apr 13 (Sat), Jun 23 (Sun), Nov 10 (Sun) | 2024

2024 B.A.A. Distance Medley

Run with Lukie’s mama or cheer us on to support ZTTK Research!

6/22 Sat (5-7pm): Join us at the Aeronaut Beer Garden in Allston! We will have a table there to raise awareness for ZTTK. We will also have Lukie T-shirts and stickers for ‘Lukie ambassadors’! RSVP here!
6/23 Sun (8-9am) Cheer us on along the course (wear your Lukie T-shirt!)

Can’t make either but still want some Lukie swag? Email me!

May 12, 2024 (Sun) | 10am

M.O.M.’s Run or Walk 5K